Everything I've never said by Samantha Wheeler
UQP, 2018. ISBN 9780702260278
(Age: 10-15) Highly recommended. This is a powerful book that gives
a voice to a protagonist who cannot speak. Ava has Rett Syndrome,
therefore she can't talk or use her body in any way to communicate.
At times she cannot control her loud outbursts and her older sister
is ashamed of her and does not want her friends to be in contact
with Ava. Their parents do their best but can only guess at Ava's
needs and preferences.
The already struggling family is barely coping when they reach a
crisis point. The father has a heart attack and finds himself
seriously debilitated and shares many of Ava's physical problems.
What makes this book so powerful is that the reader can hear Ava. We
are inside her mind and share her frustrations about communicating
to the outside world.
There is hope for a change in her life when she has a new carer
Kieran, who feels there must be an answer to Ava's communication
needs. Her new friend Aimee shows Ava a possible future world where
she can experience new activities and skills.
I have read other novels by Samantha Wheeler, Mister
Cassowary and Turtle
trackers both of which have a strong environmental
message but this book is more personal as Samantha's youngest
daughter has Rett Syndrome.
The books cover shows Ava's face as she floats in the pool. It is a
time when her body is suspended by the water and she is physically
freer than at any other time in her life. It is a wonderful image
that captures the person, not the disability.
I found this novel a compelling read and an insight into a world that
is difficult to understand as an outsider. I would highly recommend
this book to 10 to 15 year olds.
A book
trailer is available on YouTube.
Jane Moore